Monthly Archives: April 2011

Structure or Regression: 4-10-11

A Tenet of Special Needs: Every parent of a special needs child fears “lack of structure”. You begin to hear that term as soon as your child is identified. I assume you work at it for the rest of your functioning parental life. Because, the warning goes, if your child does not have “structure”, they… Read the Rest Of This Article

Looks Like She Is Ready: 4-9-11

Saturday 11:30 a.m. ” I want to do Angelfish with Cindy this summer”. Our daughter appears to be ready to leave her school for good! Wow. She proudly announce this decision before noon today via cell phone.  “I need to work this summer!” Tempted But Controlled: I was briefly tempted to review that both Angelfish… Read the Rest Of This Article

Confusion Looms: 4-8-11

Grey Choices:  Making decisions when grey is the color of the moment, is tough for all of us. Our daughter is at a crossroads of such a situation. Summer Planning is Obtuse: Eluding us is a concrete aged out plan for the summer due to funding delays. Question: should our daughter return to her school… Read the Rest Of This Article

Parenting Special Needs: Find a Mutual Passion: 4-7-11

Bonding and Passion: Follow Their Bread Crumbs. I was thinking about how I discovered the key to managing a young defiant special needs child. For many many years our daughter was resistant to most activities outside the home except shopping. She loved the mall. At 2 years old she could go through the racks of… Read the Rest Of This Article

Are We There Yet? 4-6-11

Purpose, Patience and Perseverance, The Three P’s of This Process: A fellow parent from my daughter’s school emailed yesterday with questions regarding the aging out process. Her daughter is a fellow schoolmate of our daughter, one year her junior and from a different state. As I responded to her email a bunch of memories flowed… Read the Rest Of This Article

Apartment Hunting and Oprah: 4-5-11

Today looked great: The “Other Mother” and I went to look at an apartment in the desired location, a nearby town with excellent services and a wonderful adult special needs community. We had visited an affordable housing site a week earlier in a less desirable town. The apartment we visited today was perfect. Three hours… Read the Rest Of This Article

Funding: A Cautionary Tale, 4-4-11

Vigilance Required:  As we approached our daughter’s 21st birthday, and subsequent aging out of our school district, we considered whether an out-of-pocket third post secondary year at her special education boarding school, would be indicated. “Out of pocket” 100%! Our local school district has funded an important portion of our daughter’s education for the last… Read the Rest Of This Article

Having A Comrade Helps: 4-3-11

Our daughter is matched with another young lady to share an apartment (a CRS), and supervisory staff (utilizing the same service agency, required,  and a common DDS case manager, helpful but not necessary). Two young ladies together is good. For funding and other reasons, three would be better but no other match exists at this time…. Read the Rest Of This Article

Crazy Quilt, 4-2-11

The actual date of the allocation of funding for our daughter’s new life remains elusive due to the labyrinthine nature of bureaucracy. Slated as a “priority age out”, that is, 21 years old, and having lived outside the parental home, with a sufficient level of need, our daughter is in a good position to receive… Read the Rest Of This Article