transitions and special needs


Post-Traumatic Momma; Completing The Quilt: 10-12-11

Sewing It Up: Happily, today I received a call from the ABD vocational director who has finalized the hiring of the missing piece, that vocational staff person whose presence is necessary to complete the quilt of our daughter’s daily adult life. A couple of weeks ago the ladies met her and she now has even… Read the Rest Of This Article

Patches Missing In The Quilt: 10-09-11

The Vocational Patch: It is now probably six weeks or so since the vocational life skills staff member abruptly left her post, leaving our daughter with only one volunteer job at The Complete Cat Clinic, a placement I had found for her two years ago. The other possibilities, ROAR, the animal shelter, and the senior residence… Read the Rest Of This Article

Part of The Process, Not The Solution: 10-7-11

Epilogue: Last evening at 9:15 I called my daughter’s cell phone to find out how her SPHERE rehearsal went, and if she felt O.K. about being there. As there was no answer, I called the CRS (Continuous Support Services) apartment phone line, knowing the staff person likely would answer. And she did. Her first words… Read the Rest Of This Article

Local Forgiveness and “Anything Goes”: 10-03-11

Anything Goes: Our daughter called twice today with scheduling questions. She likes to line up her events, which this week include attending theater on Wednesday to see “Anything Goes”, the 1930’s Cole Porter musical romance. The tickets are a combined graduation and upcoming birthday gift from her aunt. Our daughter loves the show’s leading lady,… Read the Rest Of This Article

Witch/Which Mother? 9-28-11

Witch Mother Makes An Appearance: Today is a grey, wet, merciless looking day. It started out decently between my daughter and me. I met her at the apartment with the intent to shop for PJ’s. The new furniture, ottoman and two side tables, fits like a glove. No problem, no defects. But my daughter’s room… Read the Rest Of This Article

Flying Home On A Donut: 9-24-11

We Made It: I missed an exit leaving the Cape, no surprise as I was super sleepy. Sharing a bed with our daughter in an Inn she disliked (my mistake) left me super drained and groggy. Probably stirred up by the prospect of the following morning’s memorial service and reunion with former classmates, teachers, and… Read the Rest Of This Article

A Shared Grief and A Puncture: 9-23-11

Riverview: What a profound place, this special education school that embraces its students and their families with arms of acceptance and devotion, class and humor. The memorial service for this precious young man, who perished because his seizure disorder interrupted an innocent dive into a lake he has probably spent years paddling about in, wrapped… Read the Rest Of This Article

Purposeful Blogging, Pass It Along: 9-15-11

Get Started Now: Our daughter has been participating in the Ability Beyond Disability adult program for 2 plus months with the residential piece in place for the last 6 weeks. As I track this transition to independent living with supports, I am mindful that readers who have more recently joined this narrative may not benefit… Read the Rest Of This Article

Looking Ahead And Behind: 9-13-11

Full Schedule: Our daughter’s Fall schedule is rich in variety. She has a concert date to see Cobie Caillot, her current favorite, a trip to her alma mater for the memorial service of her school friend, the resumption of her riding class, Pegasus, this Saturday, hopefully new volunteer options including ROAR the animal shelter in… Read the Rest Of This Article

A Celebration For The Artists: 9-9-11

Sphere Art Program: The Ridgefield group SPHERE had their end of summer art show last night. Our daughter’s many pieces were displayed including the papier-mâché dog head. She and her apartment-mate greeted us in the Lounsbury House, the 1896 mansion on Main Street that serves as Ridgefield’s elegant community center. SPHERE board members were taking… Read the Rest Of This Article